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Dear Investigator, 

We are happy to invite you to register for and present your work during a day of Scientific Workshops as part of the Simons Searchlight Family and Research Conference to be held on Thursday, August 4, 2022 at the Hyatt Regency Baltimore Inner Harbor conference center - in Baltimore, Maryland. These four concurrent workshops will cover CSNK2A1, HIVEP2, MED13L and SETBP1. We hope to build off conversations from the 2020 and 2021 virtual scientific meetings, covering current progress in clinical and basic research for each gene, and discussing relevant therapeutic opportunities.  

The scientific workshops are open to invited investigators and their staff/trainees, patient advocacy group leadership and Simons Foundation science team members. The general structure of the day will be as follows (note the schedule is subject to change; all times are Eastern Daylight Time):

  • 8:00 am - Breakfast opens for attendees

  • 10:00 am - Workshops begin (Researcher presentations)

  • 12:00 pm - Lunch

  • 1:00 pm - Workshop continues (Researcher presentations)

  • 3:00 pm - Collaborative discussion

  • 4:00 - 6:00 pm - Reception -- opportunity to meet family attendees

Following these workshops will be the Family Conference from August 5 - 7, where the audience will be families from the CSNK2A1, HIVEP2, MED13L and SETBP1 communities along with interested researchers conducting their SFARI funded research projects.  

Please register for the August 4 scientific workshops using this current portal.  If you also plan to join the patient/family-oriented conference August 5 - 7, we ask that you contact us at conference@simonssearchlight.org. Our team will follow up and work with you to get you registered for that event. 

All attendees must follow our COVID-19 safety policy, which can be found online here.

Simons Foundation Autism Research Initiative (SFARI) will handle all travel arrangements directly and cover all costs associated with travel and lodging for no more than one member per laboratory, therefore please plan accordingly. In-person attendance is strongly encouraged to ensure robust discussion, however we also will have an option for video feed if you are unable to travel.

After holding several years of virtual workshops for these genetic conditions, we look forward to interacting with many of you in person in August. As a science organization, the Simons Foundation follows the current COVID-19 guidelines from the Centers for Disease Control and Prevention (CDC).  We recognize that information about COVID-19 is evolving, and will keep you informed if any meeting plans need to be revised. 

Warm regards,

Wendy Chung, M.D., Ph.D.

Director of Clinical Research, SFARI

Principal Investigator, SPARK and Simons Searchlight


Michael Boland, Ph.D.        

Consultant, SFARI and Simons Searchlight

Assistant Professor, Columbia University